Rare Disease Day 2023: Date, Theme, History Significance, Celebration & More

Rare Disease Day 2023: Rare Disease Day is celebrated on the last day of the month, which is February 28 this year. The goal of Rare Disease Day is to raise awareness of rare diseases among the general public and motivate decision makers and researchers to consider the needs of people affected by rare diseases.

tomorrow is #RareDiseasesDay 2023!

💡 Light up at 7pm wherever you are to raise awareness for people living with a rare disease!

🏛️ Find an illuminated monument near you: https://t.co/LRb1IGhZBZ

🏠 Discover how to light up your home: https://t.co/S0PNzbafDo#LightUpForRare pic.twitter.com/ZXywyedgLJ

— Rare Disease Day (@rarediseaseday)
February 27, 2023

What is a rare disease?

A rare disease is a disease that affects a small percentage of the population. In some parts of the world, an orphan disease is a rare disease for which there is not a large enough market to obtain funding and support to find treatments, unless the government offers financially advantageous terms for developing and commercializing such treatments.

Rare Disease Day 2023: Theme

This year 2023, the theme for Rare Disease Day 2023 is “Share Your Colors.” It is a call to patients, governments, world leaders and other stakeholders in positions of power to end the stigma associated with people living with rare diseases and work together to raise awareness of the difficulties these patients face.

Rare Disease Day 2023: History

The day was created in 2008 by the European Organization for Rare Diseases to raise public awareness about diseases that go undiagnosed and untreated. This organization states that, while there are numerous days dedicated to people suffering from specific diseases (such as AIDS, cancer, etc.), until now there has not been a day to represent those affected by rare diseases. Additionally, the organization states that social networks to support people with rare diseases and their families are inadequate. The National Organization for Rare Diseases organized 200 rare disease patient advocacy groups in the United States in 2009, and organizations in China, Australia, Taiwan and Latin America also led efforts to coordinate events and publicize the day in their respective nations.

Furthermore, the European Organization for Rare Diseases (EURORDIS) organized the first Rare Disease Day, which took place on February 29, 2008, in several European countries as well as in Canada through the Canadian Organization for Rare Diseases. The date was selected because February 29 is a “rare day” and 2008 marked the 25th anniversary of the United States’ adoption of the Orphan Drug Act.

List of holidays in March 2023

Rare Disease Day 2023: Importance

The main goal of Rare Disease Day is to increase public and political awareness about rare diseases and how they affect the lives of patients. Additional focal points for observation include:

  • Rare Disease Day raises public awareness of rare diseases while motivating researchers and policymakers to address the needs of people affected by rare diseases.
  • Since most rare diseases are incurable and many go undiagnosed, raising awareness about them encourages people to consider discovering a treatment.
  • The quality of life of many people around the world has improved as a result of significant global advances in rare disease policy over the years. And the credit goes to the constant struggles and practices observed on Rare Disease Day.

Since the establishment of Rare Disease Day, thousands of events have been held each year, ranging from runs and walks to art exhibitions and workshops. Rare Disease Day participants organize events, meetings and campaigns, as well as participate in walks and press conferences, organize fundraisers and write en masse to elected officials. These meetings are held to draw attention to decision makers and motivate social change.

Important days and dates in February 2023

Categories: Optical Illusion
Source: sef.edu.vn

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